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Monday, 27 April 2009
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Ivy is growing!!!!!!!
We have started going to a new Physical Therapist in Pittsburg, Ks., this lady is wonderful!!!!!! Since going to her, Ivy is now starting to reach for her toes, her knees, when sitting on her bottom she bends forward almost touching her mouth to her toes!!!!! She is still pulling up when hanging on to our fingers. She is using her mouth muscles more and more!!! She says "no" and "yeh, yeh", shakes her head yes and no, especially when asking her a question!!!
Sunday, 04 January 2009
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Happy New Year
How easy it is for us to forget the goodness and provision of God and to even forget specific and highly memorable events in our lives when we are sure that God had worked on our behalf!One of Satan’s schemes is to distract us and allow us to forget how God has been faithful to us in the past. Perhaps Satan will, with God’s permission (Job 1), bring tragedy into our lives to trick us into forgetting the mercy of God as we become distracted by present difficulties.
Or, perhaps, he will exploit the goodness of God manifested in our lives by distracting us from worshiping the true Source of the goodness. Whatever his methodology, his desired result is that we forget God and His faithfulness to us.
When times are bad, we can get caught up in the overwhelming circumstances and emotions, dwelling on ourselves rather than God, which is a twisted form of pride.
When times are good, the many things around us to enjoy can become our undoing if we forget our God Who is the best and most valuable resource that we have.
Our enemy is shrewd, and we must remember that we are vulnerable in both good times and in bad. We are prone to forget the deliverance of God and how He has worked in our lives specifically in times past.
No matter what the events are around us or how we feel, we need to call to mind Scripture about God’s love and faithfulness. And it is helpful and edifying to remember when we were in confusing, difficult places before and how God caused all things to work for our good. We need to remember, for example, when we were pulled out of a pit of despair, had our eyes and hearts opened to the truth, saved from an addiction, delivered from temptation, spared a negative relationship, miraculously provided for, granted new strength, given what we prayed for, etc.
We each have a story to tell of how God has worked in our lives, and we, of all people, need to recall those provisions and works of God in our lives. God is real, He is at work always around us and in us, and He cares. He cares that we would remember His goodness such that we would choose to believe and be faithful in the present.
Surely we have our own stories to call to mind of His faithfulness, provision, mercy, love, and power. When we feel like giving up or giving in or if we begin to feel nothing at all in regard to our Lord, let us be faithful to call to remembrance the faithfulness of our God.
As we start a new year may God enable us to be intentional about remembering and to beware lest we forget.
Decorating the tree
Making a gingerbread house
Ivy holding her "Babys first Christmas" ornament
I hope you have all had a great holiday season. We sure did. I know we all felt incredibly thankful to be home and to be together. Last year we were in the hospital with Ivy and it just wasnt the same as being home.
We had a great time with friends and family and really enjoyed seeing everyone and spending time together.
May God Bless you and your families in this new year.
It is almost a year since we have been home from Children's Mercy Hospital. Ivy is doing great. She has not had to be in the hospital and has not even had as much as a cold, praise the Lord. She is 15 months old and weighs 16lbs 15 oz. We are working on weening her off of the ventilator and she is off for a few a hours a day, sometimes more. It is a slow process, but just like everything else with Ivy God uses her to teach us to trust in him and wait on his perfect timing. And he has shown us his loving guidance through it all.
She is such a happy girl and brings us so much joy. She is truly our little miracle and I thank God for her.
Saturday, 15 November 2008
Thursday, 13 November 2008
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Ivy is starting to laugh. The only sound that comes out is a little "KKKKK" sound.
Wednesday, 12 November 2008
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Vacation to Branson, Mo
We got to go to Branson, Mo for the weekend and we had a great time.
We hadnt gotten to go on vacation for 2 years so we were so thankful to get to go.
Ivys_Vine
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- Name: See Ivy Bloom
- Gender: Female
- Member Since: 2/6/2008
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About Me
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Ivy has a rare genetic condition called Costello Syndrome. There are about 300 people with Costello Syndrome in the world and about 80 in the US.(for more information visit www.costellokids.com)
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